Alzheimers Guilt

Christmas came and went and so has the first month of this new year.  Dad co25014 Christmas tree at Eddie'sntinues to lose ground slowly.  His hearing has faded and his vision has gotten worse.  He sleeps more and paces less.Food no longer teases his taste buds and meals are just part of a routine. I wonder sometimes if it’s just the disease or the lack of stimulation.  Dad now refuses to participate in group activity and prefers to just be left alone. His sense of humor is still intact and he loves to laugh with both the staff and his family.  Laughter was prevalent in our family and even Alzheimer’s isn’t powerful enough to rob us of that.

There are days when I feel guilty.  Sometimes the guilt is about not wanting to visit as often.  Sometimes it’s about not taking care of him at home.  I’ve learned to live with the guilt but it still hurts sometimes.  My Dad didn’t deserve what Alzheimers has done to him but this disease simply does not discriminate.

When I started this blog, I hoped that in sharing the experience, others might be helped by knowing they weren’t the first to feel angry or sad or, afraid.  After all this time I still feel all of those things from time to time.  I cry easily over the smallest of things and am surprised when the big things don’t affect me at all.  If I’ve learned anything at all it is that I have a lot more to learn and I am expecting 2015 to be full of hard lessons.  We can’t hold this disease at bay much longer.  That much is evident.  The medications (Namenda and Aricept) gave us a bit more time with Dad and the Seroquel has helped to balance the fear and confusion that Dad must have felt as his senses lost their connection to rational thought.  Now, it feels like we’re watching a light bulb burn out slowly.  Every now and then there is a flicker of bright light and then it pales again.  Each time leaves me wondering if it is the last and I am always surprised when I catch myself hoping so.  The guilt comes in waves again,

If there is a bright light here it is that my Dad is content.  He isn’t suffering.  He doesn’t miss his family and friends but we sure miss him.

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One thought on “Alzheimers Guilt

  1. Hello, I have been reading your posts about your father’s Alzheimer’s and I pray for you and your father and wish you strength in this journey you are taking with him.

    My name is Mona Sabalones Gonzalez, and I work for a website called Care Homes Today.

    I love your blog and very much appreciate the service you are doing for others who may be dealing with someone who has Alzheimer’s and often feels very much alone in the world.

    Care Homes Today believes that Alzheimer’s deserves more attention, more general understanding of the illness, more funding for research. Every month we feature a personal story of someone who either is afflicted with Alzheimer’s or is a caregiver of someone with Alzheimer’s.

    I personally loved your piece, “The Stranger in my House,” and wonder if you would allow us to reprint it on our website. Any photos, videos and links are most welcome. Definitely, we would include a link to your website, and any other links you would like to include.

    If you think this is possible, kindly let me know. My personal email is monagonzalez54@gmail.com.

    God bless, and I’ll keep your wonderful dad in prayer.

    Sincerely,

    Mona

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